脊髓损伤患者居家康复期同伴支持体验的质性研究
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女,硕士在读,护师,学生

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江西省科技厅重点研发项目(20171BBG70022);江西省卫生健康委科技计划项目(202410022);南昌大学第一附属医院临床研究培育项目(YFYLCYJPY202433)


Peer support experiences in patients with spinal cord injury during home rehabilitation:a qualitative study
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    目的 了解脊髓损伤患者在居家康复期对同伴支持的真实体验,为构建和完善脊髓损伤患者同伴支持干预策略提供参考。方法 基于社会支持理论,采用描述性质性研究方法,以目的抽样法选取12例居家康复期的脊髓损伤患者进行半结构式访谈。采用内容分析法对访谈资料进行编码、分类、解释及综合分析。结果 共提炼出4个主题和11个亚主题,即同伴支持的获取路径与互动形式(非正式渠道的自主联结、专业机构的介绍和组织、线上线下融合的互动形式),同伴支持的核心价值(情感支持与心理调适、经验知识与实践指引、自我成长与身份转化、希望与信心灌注),同伴支持的感知特征(深度共情与心理归属、独特性与不可替代性),同伴支持的局限与风险(情绪感染与心理损耗、信息准确性与专业性欠缺)。结论 医护人员应积极构建系统化、规范化的脊髓损伤患者同伴支持网络体系,深刻把握同伴支持的核心价值,全面激活其独特功能与优势,同时注意识别其中的局限与潜在风险,优化干预策略以保障同伴支持的有效性和可持续性。

    Abstract:

    Objective To explore the peer support experiences of patients with spinal cord injury during home rehabilitation, and to provide references for developing and improving peer support intervention strategies. Methods Based on the Theory of Social Support,a descriptive qualitative research method was used to conduct semi-structured interviews with 12 patients with spinal cord injury during home rehabilitation by purposive sampling. Content analysis was used to encode, classify, interpret and comprehensively analyze the data. Results Four main themes and eleven sub-themes were identified:ways to obtain peer support and forms of interaction(autonomous connection through informal channels, the introduction and organization of professional institutions, an interactive form of online and offline integration), core values of peer support (emotional support and psychological adjustment, experiential knowledge and practical guidance, self-growth and identity transformation, infusion of hope and confidence), perceived characteristics of peer support (deep empathy and psychological belonging, unique and irreplaceable), limitations and risks of peer support (emotional infection and psychological depletion, lack of information accuracy and professionalism). Conclusion Healthcare professionals should actively build a systematic and standardized peer support network system for patients with spinal cord injury, and deeply grasp the core value of peer support to fully activate its unique functions and advantages.At the same time, attention should be paid to identify the limitations and potential risks of peer support, and optimize intervention strategies to ensure the effectiveness and sustainability of peer support.

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刘启慧,王建宁,李立群,赵欣颖,刘娟,叶俊.脊髓损伤患者居家康复期同伴支持体验的质性研究[J].护理学杂志,2026,41(12):98-102

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  • 收稿日期:2025-12-23
  • 最后修改日期:2026-02-21
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  • 在线发布日期: 2026-07-29