青少年1型糖尿病患者家庭参与疾病管理的质性研究
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女,硕士在读,护士

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2026年度河南省重点研发与推广专项(科技攻关)项目(262102310179)


Family participation in disease management among adolescents with type 1 diabetes:a qualitative study
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    目的 探讨青少年1型糖尿病患者家庭参与疾病管理的发展过程及阶段特征,为促进患者家庭参与疾病管理提供参考。方法 采用目的抽样法,对20例青少年1型糖尿病患者及20名主要照顾者进行半结构式访谈,采用程序化扎根理论的范式提炼概念与范畴。结果 共提炼22个初始范畴和4个主范畴,包括4个动态演化阶段,分别为冲击期、冲突期、重构期和维持期。结论 青少年1型糖尿病患者家庭参与疾病管理是多阶段、动态演变的过程,受家庭内部互动及外部支持系统共同影响,需结合不同阶段核心需求制订分层干预措施,以优化疾病管理效果。

    Abstract:

    Objective To explore the developmental process and stage characteristics of family participation in disease management among adolescents with type 1 diabetes, and to provide evidence for family participation in disease management. Methods Using purposive sampling, semi-structured interviews were conducted with 20 adolescents with type 1 diabetes and 20 primary caregivers. Data were analyzed using the paradigm model of procedural Grounded Theory to extract concepts and categories. Results A total of 22 initial categories and 4 core categories were identified, and four dynamic evolutionary stages were formed:the shock stage, the conflict stage, the reconstruction stage, and the maintenance stage. Conclusion Family participation in disease management among adolescents with type 1 diabetes is a multi-stage and dynamic process influenced by both internal family inte-ractions and external support systems. Stage-specific and stratified interventions should be developed based on the core needs of each stage to optimize disease management outcomes.

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吕晓辰,王晓凡,乔若凡,郑纪萱,徐晖,渠利霞,张春慧.青少年1型糖尿病患者家庭参与疾病管理的质性研究[J].护理学杂志,2026,41(12):103-108

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  • 收稿日期:2026-01-03
  • 最后修改日期:2026-03-04
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  • 在线发布日期: 2026-07-29