嵌合抗原受体T细胞免疫治疗患者及其照顾者治疗体验的旅程地图研究
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女,本科,护师

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科研项目:2023年华中科技大学同济医学院附属同济医院科研基金护理专项(2023D27)


The experience of patients and caregivers undergoing chimeric antigen receptor T-cell immunotherapy:a journey mapping study
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    摘要:

    目的 描述嵌合抗原受体T细胞免疫治疗患者及其照顾者在治疗过程各阶段的就医体验并进行可视化呈现,为该治疗人群的全流程照护管理提供参考。 方法 采用目的抽样法选取23例嵌合抗原受体T细胞免疫治疗患者及其主要照顾者进行半结构式深入访谈,结合Colaizzi 7步分析法进行访谈资料分析。 结果 按治疗时间轴,从任务、情感和痛点3个维度将嵌合抗原受体T细胞免疫治疗患者及其照顾者的全流程管理中5个治疗阶段的治疗体验和问题进行细分归纳总结,并绘制成患者旅程地图。 结论 嵌合抗原受体T细胞免疫治疗患者及其照顾者存在多维且动态变化的治疗需求、体验和痛点,医护人员可根据其旅程地图洞察各阶段机会点对患者实施高效精准的护理管理及优化策略。

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    Objective To describe and visually present the stages and treatment experiences of patients and caregivers undergoing chimeric antigen receptor T-cell (CAR-T) immunotherapy, and to provide a reference for whole-process care management for this patient population. Methods Using purposive sampling method, 23 patients undergoing CAR-T immunotherapy and their primary ca-regivers were selected for semi-structured in-depth interviews.The interview data were analyzed using the Colaizzi′s 7-step framework for phenomenological analysis. Results Along the treatment timeline of CAR-T immunotherapy, the treatment experiences and problems reported by patients and their caregivers were summarized and subdivided across five stages from three dimensions:tasks, emotions, and touchpoints.A patient journey map was then developed. Conclusion Patients receiving CAR-T immunotherapy and their caregivers exhibit multidimensional and dynamically changing treatment needs, experiences, and touchpoints.Healthcare professionals can use the journey map to identify opportunities at each stage, and implement precise, efficient nursing management and optimization strategies.

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张姿怡,阮海涛,万滢,何细飞.嵌合抗原受体T细胞免疫治疗患者及其照顾者治疗体验的旅程地图研究[J].护理学杂志,2026,41(13):24-30

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  • 收稿日期:2026-01-10
  • 最后修改日期:2026-04-19
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  • 在线发布日期: 2026-08-07