肿瘤儿童安宁疗护中父亲角色体验的质性研究
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女,本科,主管护师

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科研项目:华中科技大学同济医学院附属协和医院“药技护”基金(F016020042300115106)


A qualitative study on fathers′ role experience in pediatric palliative care for children with cancer
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    目的 探讨肿瘤儿童安宁疗护中父亲角色的体验,为制订针对性的照顾者支持策略提供参考。 方法 采用描述性质性研究,对14名肿瘤儿童父亲进行半结构式访谈,采用内容分析法分析资料。 结果 提炼出复杂的情感反应、角色重构、多重困境、寻求支持与自我调适、认知转变与意义重建5个主题及14个亚主题。 结论 肿瘤儿童安宁疗护中父亲角色的体验复杂且面临多重困境与支持需求,临床应重视该群体的独特照护体验与心理需求,并推动涵盖性别敏感照护的服务体系建设,提升家庭整体安宁疗护质量。

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    Objective To explore the experiences of father′s role in pediatric palliative care for children with cancer, and to provide a reference for targeted caregiver support. Methods A descriptive qualitative study was conducted.Semi-structured interviews were carried out with 14 fathers of children with cancer.Data were analyzed using content analysis. Results Five themes and 14 sub-themes were identified:complex emotional reactions, role reconstruction, multiple dilemmas, support seeking and self-adjustment, and cognitive transformation and meaning reconstruction. Conclusion The experience of father′s role in pediatric palliative care is complex, with multiple dilemmas and support needs.Healthcare providers should pay attention to the unique caregiving experiences and psychological needs of this group, promote the development of a service system that incorporates gender-sensitive care, and thereby enhance the quality of palliative care for the entire family.

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昌晓,孙丽,曲莲莲,赵文雅,涂嫡,吴丽芬,何娇,汪欢.肿瘤儿童安宁疗护中父亲角色体验的质性研究[J].护理学杂志,2026,41(13):110-115

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  • 收稿日期:2026-01-09
  • 最后修改日期:2026-03-12
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  • 在线发布日期: 2026-08-07