风湿病患者及利益相关者参与药物管理共享决策的质性研究
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女,硕士在读,学生

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山西省哲学社会科学规划课题(2025YB158);山西省中医药科研课题(2025ZYYB071);山西中医药大学2025年研究生科研实践创新项目(X2025SJ041)


A qualitative study on shared decision-making in medication management among patients with rheumatic diseases and stakeholders
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    摘要:

    目的 深入探讨风湿病患者及利益相关者参与药物管理共享决策的意愿、需求及影响因素,为制订有效的共享决策实施策略提供参考。方法 采用描述性现象学研究设计,以目的抽样法选取13例风湿病患者、8名照护者、11名医护人员进行半结构式访谈,采用主题分析法对资料进行整理分析。结果 共提炼出4个主题及9个亚主题:共享决策实施的必要性(患者缺乏充分的沟通和决策参与导致用药依从性差,医护人员无法落实共享决策)、多方参与意愿分化且患方决策相关诉求被忽视(医、护、患、照护者参与意愿存在差异,患者及照护者的感受与需求被边缘化)、共享决策实施的正向促进因素(组织领导力的正向倡导作用,家庭支持资源对共享决策的助推作用)、共享决策实施的现实阻碍因素(临床资源与环境的多重限制,角色认知模糊与责任边界不清,医护人员对医患矛盾的深层忧虑)。结论 风湿病药物管理共享决策面临多重障碍,需加快开发贴合临床的决策辅助工具与标准化流程,建立决策偏好快速识别及家庭支持评估机制,并将情感回应纳入沟通质量评价,促进共享决策在临床的深入推广。

    Abstract:

    Objective To explore the willingness, needs and influencing factors of shared decision-making participation in medication management among patients with rheumatic diseases and stakeholders, and to provide references for formulating effective SDM implementation strategies. Methods A descriptive phenomenological study design was adopted.Using purposive sampling,13 patients with rheumatic diseases, 8 caregivers, and 11 healthcare professionals were recruited for semi-structured interviews.Data were analyzed using thematic analysis. Results Four themes and nine sub-themes were identified:necessity for the implementation of shared decision-making (poor medication adherence resulting from insufficient communication and inadequate patient participation in decision-making, and the failure of medical staff to implement shared decision-making);differentiation of multi-stakeholder willingness and neglect of patients′ decision-related needs (differences in participation willingness among doctors, nurses, patients, and caregivers,marginalization of patients′ and caregivers′ feelings and needs); facilitators of SDM implementation (positive advocacy role of organizational leadership,supportive role of family support resources);and barriers to SDM implementation (multiple constraints of clinical resources and environment,ambiguous role perception and unclear responsibility boundaries,healthcare professionals′ deep concerns about patient-provider conflicts). Conclusion SDM in rheumatology medication management faces multiple barriers. There is an urgent need to accelerate the development of clinically applicable decision aids and standardized procedures, establish mechanisms for rapid identification of decision preferences and family support assessment,and integrate emotional responses into communication quality evaluation,thereby promoting the in-depth implementation of SDM in clinical practice.

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侯嘉宁,赵华,苗华丽,刘宇丹,杨佳乐,刘星语,李佳淇.风湿病患者及利益相关者参与药物管理共享决策的质性研究[J].护理学杂志,2026,41(14):42-47

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  • 收稿日期:2026-02-20
  • 最后修改日期:2026-04-06
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  • 在线发布日期: 2026-08-31