发育性髋关节发育不良患儿康复训练体验及影响因素的纵向质性研究
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女,硕士,护师

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科研项目:重庆市科卫联合医学科研项目(2023MSXM026)


Rehabilitation training experiences and influencing factors among children with developmental dysplasia of the hip:a longitudinal qualitative study
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    目的 探索发育性髋关节发育不良患儿及其主要照护者康复训练体验及影响因素的动态变化,为优化康复训练方案提供参考。 方法 采用纵向质性研究方法,以目的抽样法选取行切开复位手术治疗的15对 发育性髋关节发育不良患儿及主要照护者为研究对象,分别于术前1~2 d、术后6~8周、术后3个月、术后6个月进行半结构式访谈,采用纵向质性研究方法对资料进行横断面和纵向分析。 结果 共提炼出2个主题和8个亚主题,即 发育性髋关节发育不良患儿及照护者康复训练体验变化历程(术前:对疾病与康复的认知缺乏;术后6~8周:术后疼痛与支具限制下的活动受限;术后3个月:关节功能恢复中的身体再适应;术后6个月:负重行走的恐惧与步态矫正的担忧), 发育性髋关节发育不良患儿及照护者参与康复训练的影响因素(术前:家庭参与意愿与能力差异;术后6~8周:长期卧床的身心双重负担;术后3个月:训练后的正向反馈促进康复行为延续;术后6个月:长期康复行为的维持困境与医患协同的保障作用)。 结论 发育性髋关节发育不良患儿及照护者在康复训练不同阶段的体验呈现动态变化,需要社会提供足够的康复支持。医护人员应重视发育性髋关节发育不良患儿及照护者康复训练不同阶段的体验与需求,及时调整干预方法,促进患儿功能恢复。

    Abstract:

    Objective To explore the dynamic changes in rehabilitation training experiences and influencing factors among children with developmental dysplasia of the hip (DDH) and their primary caregivers, and to provide a reference for optimizing rehabilitation training programs. Methods A longitudinal qualitative study was conducted.Fifteen DDH children undergoing open reduction surgery, along with their primary caregivers, were selected using purposive sampling.Semi-structured interviews were conducted at 1-2 days before surgery, 6-8 weeks, 3 months, and 6 months after surgery.A longitudinal qualitative research approach was used to conduct cross-sectional and longitudinal analyses of the data. Results Two themes and eight subthemes were extracted:the changing trajectory of rehabilitation training experiences among DDH children and their caregivers (before surgery:lack of know-ledge about the disease and rehabilitation; 6-8 weeks after surgery:postoperative pain and activity limitations under brace constraints; 3 months after surgery:physical readaptation during joint functional recovery; 6 months after surgery:fear of weight-bearing ambulation and concerns regarding gait correction), the influencing factors of participating rehabilitation training among DDH children and their caregivers (before surgery: differences in family willingness and ability to participate; 6-8 weeks after surgery:the physical and psychological burden of prolonged bed rest; 3 months after surgery:positive feedback after training promoting the continuation of rehabilitation behaviors; 6 months after surgery:difficulties in maintaining long-term rehabilitation behaviors and the supportive role of collaboration between medical staff and patients). Conclusion The experiences of rehabilitation training exhibit dynamic changes at different stages in DDH children and their caregivers, indicating the need for adequate rehabilitation support from society.Medical staff should pay attention to the experiences and needs of DDH children and their primary ca-regivers during rehabilitation training, adjust intervention methods promptly, and promote functional recovery.

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游佳欣,廖嘉丽,宿玉玺,张鹏鹏,陈琪琦,李各芳.发育性髋关节发育不良患儿康复训练体验及影响因素的纵向质性研究[J].护理学杂志,2026,41(17):17-21

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  • 收稿日期:2026-04-02
  • 最后修改日期:2026-06-02
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  • 在线发布日期: 2026-10-09